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  International Delegates  
  Meeting in
  Paediatric
  Neuromuscular
  Rehabilitation
   
 

  18-20 May
  2006

  Denmark

 

  Theme:
  Preparing for an
  Adult Life with a
  Neuromuscular
  Disease

          

 
  First name

First name

Surname

Profession

Institution

Country

Bitte

Ahlborg

DDS Senior Consultant

Mun-H-Center

Sweden

Lotta

Ahlborg

Physiotherapist

Danderyd University Hospital

Sweden

Viola

Altmann- van der Donk

MD (rehabilitation)

Sint Maartenskliniek

The Netherlands

Mie

Andersen

Regional Manager

PolarMed

Denmark

Comuth

Anton

Physiotherapist

Stichting revalidatie Limburg location Franciscusoord

The Netherlands

Unnur

Árnadóttir

Physiotherapist

State Diagnostic and Counselling Centre

Iceland

Maria

Arnoldsson

R.N.

Astrid Lindgren Childrens' Hospital

Sweden

Lena

Asztalos

Physiotherapist

Habilitation Center Tullinge

Sweden

Mathilde

Backhouse

Occupational Therapist

Montrose Access

Australia

Alette

Bagge

R.N. Clinical Nurse Specialist

Astrid Lindgren Childrens' Hospital

Sweden

Aurélie

Barriere

Occupational Therapist

Centre Hospitalier Lyon Sud

France

Mette

Bendix

Occupational Therapist

AFM

France

Chevalier

Benoît

Masseur Kinésiothérapie

CHU Angers and private sector

France

Marianne

Bergkvist

Occupational Therapist

Barn- och ungdomshabiliteringen

Sweden

Ann-Christin

Bergquist

Occupational Therapist

Barn och ungdomshabiliteringen

Sweden

Vivi M.

Bergsager

Physiotherapist

Frambu, National Centre for Rare Disorders

Norway

Susanne

Bertelsen

Physiotherapist

RehabiliteringsCenter for Muskelsvind

Denmark

Hrönn

Birgisdóttir

Occupational Therapist

State Diagnostic and Counselling Centre

Iceland

Sissel Widerře

Bredesen

Occupational Therapist

Frambu, National Centre for Rare Disorders

Norway

Jessica

Brodin

Physiotherapist

Barnhabiliteringen

Sweden

Helena

Bruno Levén

Physiotherapist

Riksgymnasiets Habilitering

Sweden

Gun-Britt

Bülow

Psychologist

Habilitation Centre Norrtull

Sweden

Kate

Bushby

Professor, MD

Newcastle Muscle Center

United Kingdom

Julie

Cassell

Care Advisor

Muscular Dystrophy Campaign

United Kingdom

Steen

Christensen

Computer Employee

RehabiliteringsCenter for Muskelsvind

Denmark

Lone Bech

Christensen

Occupational Therapist

RehabiliteringsCenter for Muskelsvind

Denmark

Maria

Clostermans

Nurse

UZ Gasthuisberg

Belgium

Berit

Dahle

Psychologist

Universitetssykehuset i Nord-Norge

Norway

Catharina

Dahlqvist

R.N.

Astrid Lindgren Childrens' Hospital

Sweden

Else

Danř

Social Worker

RehabiliteringsCenter for Muskelsvind

Denmark

Imelda

de Groot

Rehabilitation Physician

University Medical Centre St. Radboud

The Netherlands

Elodie

Deladriere

Occupational therapist

Hopital Necker Enfants Malades

France

Jřrgen

Diderichsen

Neuropediatrician

Frambu, National Centre for Rare Disorders

Norway

Annamarie

Dillon

Marketing

Genzyme BV

The Netherlands

Hélčne

Dournaux

Physiotherapist

Hopital Necker Enfants Malades

France

Lidwien

Draaisma

Occupational Therapist

St. Maartenskliniek

The Netherlands

Michelle

Eagle

Physiotherapist

Newcastle Muscle Clinic

United Kingdom

Britt-Marie

Eriksson

Occupational Therapist

The Queen Silvia Children's Hospital

Sweden

Eva

Es

Occupational Therapist

UZ Gasthuisberg

Belgium

Rachael

Fallows

Paediatric Occupational Therapist

Evelina Children's Hospital

United Kingdom

Ida

Flřytrup

Physiotherapist

RehabiliteringsCenter for Muskelsvind

Denmark

Pamela

Foley

Senior Physiotherapist

Central Remedial Clinic

Ireland

Terese

Folgerř

MD

University Hospital of Tromsř

Norway

Asger

Frost

Councellor

RehabiliteringsCenter for Muskelsvind

Denmark

Trudy

Geerligs

Physiotherapist

Rehabilitation Centre Het Roessingh

The Netherlands

Francoise

Girardot

Kinesitherapeute Cadre de Sante

Hospices Civils de Lyon

France

Heidi

Griggs

Occupational Therapist

Great Ormond Street Hospital

United Kingdom

Kristina

Gustafsson Bonnier

Coordinator

Service for rare disorders

Sweden

Elisabeth

Hammarén

Physiotherapist

Sahlgrenska University Hospital

Sweden

Oswald

Hasselmann

Neuropediatrician

Ostschweizer Kinderhospital

Switzerland

Thora Yvonne

Hellenes

Psychologist/Research and Development Consultant

Frambu, National Centre for Rare Disorders

Norway

Jos

Hendriksen

Neuropsychologist

Child Rehabilitation Centre Franciscusoord

The Netherlands

Elizabeth

Holtebekk

Physiotherapist

Rikshospitalet

Norway

Sissel

Hotvedt

Physiotherapist

Universitetssykehuset i Nord-Norge

Norway

Helge

Hćstad

Physiotherapist

University Hospital of Northern Norway

Norway

Ann-Lisbeth

Hřjberg

Occupational Therapist

RehabiliteringsCenter for Muskelsvind

Denmark

Trine Lise

Jaeger

Physiotherapist

Ullevĺl Universitetssykehus

Norway

Maria Overgaard

Jakobsen

Social worker

 

Denmark

Kristian

Jensen

Director

Danish Disability Sport Information Centre

Denmark

Jřrgen

Jeppesen

Development Consultant

RehabiliteringsCenter for Muskelsvind

Denmark

Grethe Berg

Johnsen

Nurse

University Hospital of Northern Norway

Norway

Nicole

Johnson

Genetic Counselor

Johns Hopkins Medical Institutions

USA

Saskia

Jonker

Occupational Therapist

Sint Maartenskliniek

The Netherlands

Arigje

Kanis

Social worker

Sophia Revalidatie Locatie Delft

The Netherlands

Marie

Kierkegaard

Physiotherapist

Karolinska Universitetssjukhuset

Sweden

Gillian

King

Research Director

Thames Valley Children’s Centre

Canada

Wendy

King

Clinical Assistant Professor

Ohio State University

USA

Anne-Merete

Kissow

Sport Consultant

Danish Disability Sport Information Centre

Denmark

Eva

Klokkeide

Physiotherapist

Helse-Bergen, Haukeland Universitetssykehus

Norway

Evald

Krog

National Chairman

Muskelsvindfonden

Denmark

Anna-Karin

Kroksmark

Physiotherapist

The Queen Silvia Children's Hospital

Sweden

Elisabeth

Kullenberg

Pediatrician

Barn och Ungdomshabiliteringen

Sweden

Feiwel

Kupferberg

Professor

Danish University of Education

Denmark

Berkiye

Kýrmýzýgil

MD

Association Neuromuscular Disorders

Turkey

Tone

Kyte

Physiotherapist

Vestlund Habiliteringssenter, Haukeland Universitetssykehus

Norway

Christina

Lager

Physiotherapist

Barn och ungdomshabiliteringen

Sweden

Claudine

Lejosne

Physiotherapist

CHU Brest

France

Torstein

Lerhol

Student

 

Norway

Christopher

Lindberg

MD

Neuromuscular Centre

Sweden

Christel

Lindeberg

Curator

Barn- och ungdomshabiliteringen i Malmö

Sweden

Nienke

Lommers

Occupational Therapist

Rehabilitationcenter de Hoogstraat

The Netherlands

Irene

Lund

Sjefbioingeniřr

University Hospital of North Norway

Norway

Inger

Lund Petersen

Coordinator

Rikshospitalet Universitetssykehus

Norway

Trude

Lřvlie

Occupational Therapist

Universitetssykehuset i Nord-Norge

Norway

Marja

M.J. van Tol-de Jager

Physician in rehabilitation medicine

Rehabilitationcenter de Hoogstraat and Wilhelmina Children Hospital Utrecht

The Netherlands

Anny

Madsen

Occupational Therapist

RehabiliteringsCenter for Muskelsvind

Denmark

Marion

Main

Physiotherapist

Hammersmith Hospital

United Kingdom

Sue

Manning

Specialist Care Advisor/Occupational Therapist

Leeds General Infirmary

United Kingdom

Marrit

Meintema

Physiotherapist

State Diagnostic and Counselling Centre

Iceland

Reidar

Melsom

MD, ChB

Ullevaal University Hospital

Norway

Annemarie

Mikkelsen

Social Worker

RehabiliteringsCenter for Muskelsvind

Denmark

Marina

Morrow

Physiotherapist

Yorkhill Division

Scotland

Pia

Myrup

Occupational Therapist

RehabiliteringsCenter for Muskelsvind

Denmark

Jette

Mřller

Occupational Therapist

RehabiliteringsCenter for Muskelsvind

Denmark

Bent

Nielsen

Seat manufacturer

AJ Stole A/S

Denmark

Ĺsa

Nilsson

Counsellor

Habilitation Centre Norrtull

Sweden

Gitte

Nřrgaard

Managing Director

Muskelsvindfonden

Denmark

Örn

Ólafsson

Orthotist

STS / Stod ehf

Iceland

Grethe Nyholm

Olesen

Head Nurse

Rigshospitalet

Denmark

Ulla

Ortved

Occupational Therapist

RehabiliteringsCenter for Muskelsvind

Denmark

Lars

Palmér

Pediatrician

Umeĺ University Hospital

Sweden

Robert

Pangalila

Physiatrist

Rijndam Rehabilitation Centre

The Netherlands

Bettina

Paulsen

Psychologist

RehabiliteringsCenter for Muskelsvind

Denmark

Claude

Payet

Physiotherapist

Hopital Gui de Chauliac

France

Marian

Petersen

Nurse

Rigshospitalet

Denmark

Margriet

Poelma

Physiatrist

Sint Maartenskliniek

The Netherlands

Edward

Pruen

Reverend Canon

Treloar Trust

United Kingdom

Vibeke

Purhus

Regional Manager

Genzyme DK

Denmark

Jes

Rahbek

Chief Consultant

RehabiliteringsCenter for Muskelsvind

Denmark

Magnhild

Rasmussen

MD

Rikshospitalet

Norway

José Corte

Real

Physiotherapist

Hospital Pediatrico, Coimbra

Portugal

Christina

Renlund

Psychologist

Psychotherapy Unit for Children with Disability

Sweden

Emile

Rijsdijk

Social Worker

Sint Maartenskliniek

The Netherlands

Francoise

Salama

 

AFM

France

Lisbeth

Sander Friid

Secretary

RehabiliteringsCenter for Muskelsvind

Denmark

Martina

Sardoc

Physiotherapist

Dom Dva Topola

Slovenia

Sarah

Savage

MDC Care Adviser

Muscular Dystrophy Campaign

United Kingdom

Elaine

Scott

Physiotherapist

Muscular Dystrophy Campaign

United Kingdom

Thomas

Sejersen

MD, Assistant Professor

Team for Neuromuscular Disorders, Karolinska Institute

Sweden

Jennie

Sheehan

Clinical Specialist Physiotherapist

Evelina Childrens Hospital

United Kingdom

Lena

Sjöström

Physiotherapist

Andningsgymnasterna CF AB

Sweden

Nadja

Sjöö

Physiotherapist

Barn- och Ungdomshabiliteringen i Värmland

Sweden

Hanneke

Slootweg

Occupational therapist

Sophia Revalidatie Locatie Delft

The Netherlands

Jens

Spanfelt

Members' Councellor

Muskelsvindfonden

Denmark

Gerda

Steen Larsen

Secretary

RehabiliteringsCenter for Muskelsvind

Denmark

Birgit

Steffensen

Physiotherapist

RehabiliteringsCenter for Muskelsvind

Denmark

Jane

Stein

Social Worker

Muscular Dystrophy Campaign

United Kingdom

Anja

Svärd

Physiotherapist

Vuxenhabilitering

Sweden

Helen

Thon

Physiotherapist

Tromsř Kommune

Norway

Gerardi

Timmermans

Social Worker

Sint Maartenskliniek

The Netherlands

Cathrien

van Groningen

Physician in rehabilitation medicine

Rehabilitation Centre Het Roessingh

The Netherlands

Coralie

van den Heufel

Pediatric Physical Therapist

Sint Maartenskliniek

The Netherlands

Jeanine

van der Kooi

Logopedist / Speech Therapist

Sint Maartenskliniek

The Netherlands

Tijn

van Diemen

Psychologist

Sint Maartenskliniek

The Netherlands

Agnes

van Velzen

Rehabilitation Physician

Rehabilitation Centre Breda

Belgium

Marijke

van de Wiel

Rehabilitation doctor

Sophia Revalidatie Locatie Delft

The Netherlands

Agim

Vatovci

President

Muscular Dystrophy Association of Kosovo

Kosovo, UNMIK

Carole

Vuillerot

MD

Centre Hospitalier Lyon Sud Centrum, Leiden

France

Nathalie

Warmenhoven

Physician in rehabilitation medicine

Rijnlands Revalidatie Centrum, Leiden

The Netherlands

Johanna

Weichbrodt

Occupational Therapist

The Queen Silvia Children's Hospital

Sweden

Anette

Wennström

Physiotherapist

Region Skĺne

Sweden

Birgit

Werge

Physiotherapist

RehabiliteringsCenter for Muskelsvind

Denmark

Ulla

Werlauff

Physiotherapist

RehabiliteringsCenter for Muskelsvind

Denmark

Marianne

Westh

Physiotherapist

Habilitation Centre Järva

Sweden

Jennifer

Whitehouse

Physiotherapist

Great Ormond Street Hospital

United Kingdom

Douglas

Wilcox

Consultant Geneticist

Yorkhill Hospital

Scotland

Alison

Wilcox

Medical Practitioner

Yorkhill Hospital

Scotland

Magdalena

Wyke

Occupational Therapist

Region Skĺne

Sweden

Anton

Zupan

MD

Institute for Rehabilitation

Slovenia

Coskun

Özdemir

MD

Association Neuromuscular Disorders

Turkey

Per

Aabentoft

Managing director

A/S Aabentoft

Denmark